Month of June 2015
Have you heard about unite@night walks?
Bringing together people suffering from Chiari, syringomyelia, and related disorders.
http://csfinfo.org/csf-unite-night/
The Chiari & Syringomyelia Foundation’s (CSF) unite@night is a one-mile casual evening walk in various locations around the country during the month of June. These walks bring together people who are suffering with the devastating effects of Chiari malformation, syringomyelia, and related disorders such as, but not limited to: Ehlers-Danlos Syndrome (EDS), hydrocephalus, idiopathic intracranial hypertension, dysautonomia, and more.